FIRSTHAND PATIENT EXPERIENCE

My personal experience as a rare disease patient enables me to understand and empathize with rare disease communities, providing holistic guidance and addressing specific concerns often overlooked by advisors lacking personal experience.

PATIENT-CENTRIC APPROACH

My approach puts patients first, empowering them to lead research and foster collaborations among researchers, patients, and organizations while ensuring that patient voices and priorities shape decision-making.

DUAL EXPERTISE

With skills gained from my PhD training, I am able to provide rigorous scientific guidance, bridge the gap between scientific knowledge and rare disease communities, and advocate for research directions aligned with community priorities.

Please visit my services page to learn more about the support I offer as an independent scientific advisor