My clients and services
As an independent scientific advisor, I provide professional services and technical support. I work diligently to create solutions that will leave a lasting impact and support rare disease communities.
Ruth-Anne Pai, PhD
MY CLIENTS
I offer services to:
Foundations and Nonprofits
Individual rare disease patients and families
Industry partners passionate about patient engagement
Past clients have included:
Leaders from rare disease patient organizations, and individual patients.
I have collaborated with:
Families, clinicians, academic researchers, and members of both industry and regulatory agencies.
MY SERVICES
Assess and advise on the research readiness of patient organizations:
- Define the current research capacity
- Identify the strengths, weaknesses, opportunities, and impact of current research programs
- Refine research goals and priorities
Capture the research and drug development landscape in your disease area:
- Perform a literature review
- Capture the past and current drug development landscape
- Identify researchers and clinicians (KOLs) active in your disease area
Guide the development of meaningful and sustainable research programs:
- Define organizational values for research
- Discuss and plan pathways towards establishing a collaborative research network
- Support or lead the generation of a research agenda and/or strategic research plan
- Plan, develop, and/or lead scientific working groups
- Establish research partnerships
- Discuss and implement ways to collaborate with academics on scientific publications
Plan, establish, and expand research infrastructure:
- Scientific/Medical Advisors:
- Building a SMAC
- Defining roles
- Expanding membership
- Grants Program:
- Establishing a grants program
- Developing requests for proposals (RFPs)
- Proposal review and prioritization
- Defining measures of success and impact tracking
- Advising for other research programs:
- Registries
- Biorepositories
- Natural history studies
- Patient-reported outcome measures
- Clinical trial endpoints
Provide critical communications, knowledge translation, and patient/community education
- Support planning and implementation of research communications
- Create materials to enable knowledge translation
- Capture, quantify, and share the impact of programs and projects
PAST PROJECTS
Research prioritization
- Merged literature review, community engagement, and strategic planning to identify future research directions
Review of drug development & scientific literature
- Captured and categorized the depth and breadth of research in various disease areas
- Identified clinical trial opportunities and summarized past clinical trial results
- Identified shelved and repurposed drugs in scientific literature and on clinicaltrials.gov
- Created summary slides of articles and findings
Community engagement
- Developed and planned virtual meetings with lectures and focus groups
- Conducted stakeholder interviews to identify needs and gaps
- Developed research collaborations with KOLs
Infrastructure and program development
- Supported initiation of multiple research consortia and collaborations
- Established international collaborative research network
- Organized grant review process
Knowledge translation
- Developed educational materials related to research and drug development
- Created lay summaries of scientific articles
- Advised patient leaders on experimental models
Interested in my services? I'm here to help!
Let's meet to get to know one another and discover whether there is an opportunity for me to create lasting impact for your community.